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Responsible Genetics: The Moral Responsibility of Geneticists for the Consequences of Human Genetics Research

Author(s): Nordgren, Anders
Edition: 1st
ISBN10: 1402002017
ISBN13: 9781402002014
Cover: Hardcover
 
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List Price $150.00 
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SummaryTable of Contents
The book addresses a number of well-known issues - the ethical, legal, and social implications of human genetics - but does so from a perspective that has received almost no attention: the perspective of the scientific community itself. The rhetoric of `scientific responsibility' is prominent in many discussions of genetic research ethics, but the concept is seldom defined. This book provides a more precise analysis of what it could mean. In distinction to what is common in the ELSI literature, the book also discusses bioethical method. A new kind of casuistry is developed on the basis of the empirical findings of cognitive semantics. The book will be of interest to philosophers, bioethicists, and geneticists. Because it addresses broad policy issues, it will also be of interest to science policymakers.

This book addresses well-known issues - the ethical, legal, and social implications of human genetics - but does so from an unusual perspective: the perspective of the scientific community itself. In distinction to what is common in the ELSI literature, the book also discusses bioethical method. A new kind of casuistry is developed on the basis of the empirical findings of cognitive semantics. It will be of interest to philosophers, bioethicists, geneticists, and policymakers.

Uppsala Univ., Sweden. Addresses the ethical, legal, and social implications of human genetics, but does so from a perspective of the scientific community itself. For philosophers, bioethicists, and geneticists and also to science policy makers.
Acknowledgments ix
Introduction xi
Moral Responsibility and Moral Imagination
1(50)
The Metaphor of Moral Responsibility
1(14)
Engineering or `Tinkering' in Moral Reasoning?
15(10)
Imaginative Casuistry vs. Other Normative Positions
25(16)
Imaginative Casuistry in Bioethics
41(10)
Moral Responsibility in Science
51(40)
Research Ethics
51(3)
Responsibility `of'
54(10)
Responsibility `to'
64(5)
Responsibility `for': Choice of Subject
69(4)
Responsibility `for': Research and Publication
73(3)
Responsibility `for': Application
76(8)
Content and Form of Responsibility: General Proposals
84(7)
The Human Genome Project: Justification, Promotion, and Access to Results
91(36)
Summary and Application: Responsible Genetics
91(1)
Dialogue and the Human Genome Project
92(4)
Justification of the HGP
96(9)
Promotion of the HGP
105(9)
Genetic Knowledge: Open Access or Private Patents?
114(13)
Gene Hunting, Genetic Testing, and Genetically Tailor-Made Drugs
127(44)
Dialogue in Genetic Research and Application
127(3)
Gene Hunting in Families
130(6)
Gene Hunting in Ethnic Groups
136(10)
Genetic Testing and Genetic Counseling
146(10)
Genetic Screening and Public Health Work
156(4)
Genetic Information in Employment and Insurance
160(5)
Genetically Tailor-Made Drugs
165(6)
Genetic Modification of Humans and Laboratory Animals
171(44)
Dialogue and Gene Therapy
171(11)
Germline Gene Therapy
182(17)
Genetic Enhancement
199(1)
Animals Used in Human Genetics Research
200(15)
Eugenics and the Long Term Goals of Reprogenetic Medicine
215(46)
Responsibility for Applications of Genetics: Professional Policy
215(3)
Dialogue on the Long Term Goals of Reprogenetic Medicine
218(5)
Learning from History: Eugenics
223(6)
Genotypic Prevention vs. Reproductive Autonomy: Three Prototypical Views
229(19)
Proposals regarding the Long Term Goals of Reprogenetic Medicine
248(13)
Bibliography 261(10)
Index 271

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