Patient Advocacy for Health Care Quality:

Patient advocacy has emerged in response to widespread problems in U.S. healthcare quality. Many patients are frustrated or even endangered by the care they receive. As many as 98,000 people die each year due to medical errors. Patients have difficulty establishing relationships with providers or getting good information about their conditions and find their providers unable to recognize their unique expertise about their conditions. This book identifies parent advocacy-from individual, to organizational, to grassroots policy advocacy-as a powerful source of pressure and as a potentially effective way to initiate needed changes in U.S. healthcare.

Foreward	p. ix
Preface	p. xv
Acknowledgments	p. xxi
About the Editors	p. xxiii
Contributors	p. xxv
Introduction	p. 1
What Is Patient Advocacy?	p. 3
The U.S. Healthcare System and the Need for Patient Advocacy	p. 29
Understanding What Patients are Doing Now and What Providers Can Do to Support Them	p. 59
Family-Centered Care: Why It Is Important, How to Provide It, and What Parents and Children Are Doing to Make It Happen	p. 61
E-Patients: How They Can Help Us Heal Healthcare	p. 93
The Long Reach to Basic Healthcare Services: Partnering With Lay Health Advisors to Improve Health Equity	p. 121
Improving Providers' Ability to Communicate and Create Relationships	p. 151
The Clinician's Experience: Incorporating Advocacy Into the 20-Minute Medical Encounter	p. 153
Accessing the Patient's World: Patient-Physician Communication About Psychosocial Issues	p. 185
Advocacy and Patient Literacy: What Healthcare Professionals Can Do To Help Patients Overcome Patient Literacy Barriers	p. 215
Improving the Quality of Care Through Research: Measuring Patient Activation	p. 241
Transforming Hospital and Medical School Culture to Support Patient- and Family-Centered Care	p. 261
The Contributions of Patient Advocacy in Patient Safety	p. 263
Planetree, a Hospital Model for Patient-Centered Care	p. 289
Confronting the Hidden Curriculum in Medical Education: The Challenge Faced by Patients, Families, Educators, and Administrators in Changing Medical School and Hospital Culture	p. 313
Advocacy for Improving End-of-Life Care: A 30-Year Healthcare Cultural Revolution	p. 333
Making Consumers' Voice Heard in Policy and Law	p. 359
Did Patient/Consumers Cause the Healthcare Crisis? Historical Talking Points for the 21st Century Patient Advocate	p. 361
Advocacy for Residents in Long Term Care: Lessons and Challenges	p. 387
Access to Healthcare: Using Data From a Nonprofit Advocacy Practice to Drive Policy Change	p. 419
Research Advocacy in Traditional Research Settings: Questions of Influence and Legitimacy	p. 445
Advancing Education and Professional Roles in Advocacy	p. 479
Educating for Health Advocacy in Settings of Higher Learning	p. 481
Clinical Advocacy-Clinicians Advocating for Patients and Families Facing Complex, Life-Threatening Illness	p. 507
Using the Law to Strengthen the Patient's Voice	p. 533
Conclusion	p. 567
Patient Advocacy: A Bridge to Improving Healthcare Quality	p. 569
Index	p. 603
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Patient Advocacy for Health Care Quality: Strategies for Achieving Patient-Centered Care

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