Perfectly Flawed: Living With Genetic Illness

This is an extraordinary and moving account of a family coping with Friedreich's Ataxia, a debilitating genetic illness. It describes how Krystie and her family coped with the diagnosis, the intensive medical treatment that followed and her battle to receive mainstream education. Krystie's bravery and zest for life is an inspiration to us all, but especially to those facing a diagnosis of genetic illness. "My future's full of uncertainty. Sometimes I worry that because of my illness, I won't be able to do much for myself later on in life; that all my days of fun have been and gone. But I realise that actually that isn't true. There's always another happy day just around the corner. Life is for the living, and I refuse to sit back and allow everyone else to move on without me. . But I do know one thing, whatever happens, I won't waste a second of my life, not ever!" Krystie Maddox-Lue, 2006