Prevention of Fetal Alcohol Spectrum Disorder FASD Who is responsible?
, by Clarren, Sterling; Salmon, Amy; Jonsson, EgonNote: Supplemental materials are not guaranteed with Rental or Used book purchases.
- ISBN: 9783527329977 | 3527329978
- Cover: Hardcover
- Copyright: 5/16/2011
The perfect complementation to "Fetal Alcohol Spectrum Disorder" this title for the first time gives a complete overview of prevention strategies of FADS and their effectiveness on a global scale. A real Must-Have for everyone involved in decisions about FADS prevention measures.
Sterling Clarren is CEO and Scientific Director of the Canada Northwest FASD Research Net work and Clinical Professor of Pediatrics at the University of British Columbia, Canada, and the University of Washington, Seattle. He wrote the first major summary article of the clinical pattern of malformation associated with alcohol teratogenesis in the New England Journal of Medicine in 1978. He was co-author of the 4-Digit Diagnostic Code for FAS and related conditions. Sterling Clarren developed one of the first pediatric clinics focused on the difficult diagnosis of FAS and related conditions. In 2001 he was given the Henry Rosett Award by the Fetal Alcohol Study Croup of the Research Society on Alcoholism. In 2006, he received the Award for Career Excellence from the National Organization for FAS in Washington DC. He lectures internationally and has been a distinguished visiting professor at both Queen's University, and McGill University, Canada. Amy Salmon is Clinical Assistant Professor at the University of British Columbia's School of Population and Public Health and an Adjunct Assistant Professor at the University of Victoria's Centre for Community Health Promotion Research. She also holds a research appointment at the Women's Health Research Institute, the research arm of BC Women's Hospital and Health Centre, in Vancouver. Prior to assuming the role of Managing Director with the Canada Northwest FASD Research Network, Amy Salmon was an Investigator in Addictions Research at the BC Centre of Excellence for Women's Health. Amy Salmon's research has focused on the factors that improve or compromise access to health care for women with substance use problems, and on effects of participation in harm-reduction oriented community and hospital-based services. Egon Jonsson is Executive Director and CEO of the Institute of Health Economics, and Adjunct Professor at the University of Alberta and the University of Calgary, public health sciences. For 20 years he was a professor of health economics at the Karolinska Institute, Stockholm, Sweden. He was also Director of the Swedish Council on Health Technology Assessment SBU, worked for WHO Euro, and was a health policy advisor at the Ministry of Health in Hanoi, Vietnam. He is editor of the Health Care and Disease Management series and has co-edited two success ful Wiley-VCH titles during his time at SBU: Treating and Preventing Obesity and Treating Alcohol and Drug Abuse.
Preface | p. XI |
List of Contributors | p. XIII |
Introduction | p. 1 |
The Content of This Book | p. 2 |
What is FASD? | p. 4 |
How Common is FASD? | p. 5 |
What is the Economic Burden of FASD? | p. 6 |
Annual Cost Per Person with FASD | p. 6 |
Comparing Costs | p. 7 |
Cost of Prevention versus Cost of Inaction | p. 8 |
Approaches to FASD Prevention | p. 9 |
Universal Prevention | p. 9 |
Screening for Prenatal Alcohol Exposure in Obstetric Settings | p. 11 |
Meconium Testing | p. 12 |
Maternal Self-Reporting | p. 12 |
Selective Prevention | p. 13 |
Indicated Prevention | p. 14 |
FASD Prevention in Aboriginal Communities | p. 16 |
Main obstacles to Preventing FASD | p. 17 |
Challenges in Measuring Effectiveness of FASD Prevention Initiatives | p. 18 |
Who is Responsible for the Prevention of FASD? | p. 19 |
References | p. 21 |
An Overview of Systematic Reviews on the Prevention, Diagnosis, and Treatment of Fetal Alcohol Spectrum Disorder | p. 27 |
Introduction | p. 32 |
Objective and Scope | p. 34 |
p. 34 | |
Elements of Assessment | p. 34 |
Results | p. 35 |
Search Results | p. 35 |
Characteristics of Systematic Reviews Included in the Overview | p. 36 |
Systematic Reviews on Prevention of FASD and Prenatal Alcohol Use | p. 37 |
General Characteristics | p. 37 |
Methodological Characteristics of Systematic Reviews on Prevention of FASD and Prenatal Alcohol Use | p. 40 |
Methodological Quality of Systematic Reviews on Prevention of FASD and Prenatal Alcohol Use | p. 42 |
Characteristics of the Evidence Presented in the Systematic Reviews on Prevention Approaches to FASD and Prenatal Alcohol Use | p. 43 |
Qualitative Synthesis of the Evidence on the Effectiveness of Prevention Approaches to FASD and Prenatal Alcohol Use | p. 44 |
Highlights of the Overall Results | p. 51 |
Systematic Reviews on the Diagnosis of FASD | p. 54 |
General Characteristics | p. 54 |
Methodological Characteristics of the Systematic Review on Diagnosis of FASD | p. 55 |
Methodological Quality of Systematic Reviews on Diagnosis of FASD | p. 55 |
Characteristics of the Evidence Presented in the Systematic Review on the Effectiveness of Diagnostic Approaches to FASD | p. 56 |
Qualitative Synthesis of the Evidence on the Effectiveness of Diagnostic Approaches to FASD | p. 57 |
Highlights of the Overall Results | p. 59 |
Systematic Reviews on the Treatment of FASD | p. 59 |
General Characteristics | p. 59 |
Methodological Characteristics of Systematic Reviews on Therapeutic Approaches to FASD | p. 61 |
Methodological Quality of Systematic Reviews on Therapeutic Approaches to FASD | p. 62 |
Characteristics of the Evidence Presented in the Systematic Reviews on Therapeutic Approaches to FASD | p. 62 |
Qualitative Synthesis of the Evidence on the Effectiveness of Therapeutic Approaches to FASD | p. 64 |
Highlights of the Overall Results | p. 69 |
Discussion | p. 69 |
FASD Prevention | p. 71 |
FASD Diagnosis | p. 72 |
FASD Treatment | p. 73 |
Methodological Quality of the Overview of Systematic Reviews | p. 73 |
Strengths and Limitations | p. 73 |
Conclusions | p. 74 |
Methodology | p. 74 |
Search Strategy | p. 74 |
Study Selection Process | p. 74 |
Data Extraction | p. 78 |
Methodological Quality Assessment | p. 78 |
Data Analysis and Synthesis of the Results | p. 81 |
Excluded Studies and Multiple Publications | p. 81 |
Excluded Research Studies | p. 81 |
Multiple Publications of Studies Included in the Review | p. 83 |
Summary Tables of Overall Characteristics of Systematic Reviews on Prevention, Diagnosis, and Treatment of FASD | p. 84 |
Methodological Quality of Systematic Reviews Included in the Overview | p. 93 |
References | p. 96 |
A Systematic Review of the Effectiveness of Prevention Approaches for Fetal Alcohol Spectrum Disorder | p. 99 |
Introduction | p. 105 |
Objective and Scope | p. 108 |
Methodological Approach | p. 108 |
Elements of Assessment | p. 108 |
Studies on the Effectiveness of FASD Preventive Approaches | p. 109 |
Search Results | p. 109 |
Characteristics of Included Studies | p. 110 |
General Characteristics | p. 110 |
Characteristics of the Populations | p. 111 |
Characteristics of the Interventions | p. 112 |
Components of the Interventions | p. 113 |
Characteristics of the Outcomes | p. 115 |
Types of Result Reported in the Individual Studies | p. 115 |
Methodological Quality of the Studies | p. 118 |
Highlights of the Overall Results | p. 119 |
Populations | p. 120 |
Interventions | p. 120 |
Outcomes | p. 120 |
Methodological Quality | p. 121 |
Evidence on the Effectiveness of Universal Prevention Approaches for FASD | p. 121 |
Characteristics of Included Studies | p. 121 |
General Characteristics | p. 121 |
Characteristics of the Populations | p. 122 |
Characteristics of the Interventions | p. 122 |
Components of the Interventions | p. 125 |
Characteristics of the Outcomes | p. 125 |
Types of Result Reported in the Individual Studies | p. 125 |
Methodological Quality of the Studies | p. 128 |
Results of Qualitative Synthesis of the Evidence | p. 130 |
Clinical Trials | p. 130 |
Observational Studies | p. 131 |
Summary of the Overall Results | p. 137 |
General Characteristics | p. 137 |
Populations | p. 137 |
Interventions | p. 137 |
Outcomes | p. 137 |
Methodological Quality of the Studies | p. 138 |
Evidence on the Effectiveness of Universal Prevention Approaches | p. 138 |
Evidence on the Effectiveness of Selective Prevention Approaches for FASD | p. 145 |
Characteristics of Included Studies | p. 145 |
General Characteristics | p. 145 |
Characteristics of the Populations | p. 145 |
Characteristics of the Interventions | p. 146 |
Components of the Interventions | p. 147 |
Characteristics of the Outcomes | p. 149 |
Types of Result Reported in the Individual Studies | p. 149 |
Methodological Quality of the Studies | p. 152 |
Results of Qualitative Synthesis of the Evidence | p. 154 |
Clinical Trials | p. 154 |
Observational Studies | p. 162 |
Summary of the Overall Results | p. 164 |
General Characteristics | p. 164 |
Populations | p. 165 |
Interventions | p. 165 |
Outcomes | p. 165 |
Methodological Quality of the Studies | p. 165 |
Evidence on the Effectiveness of Selective Prevention Approaches | p. 165 |
Evidence on the Effectiveness of Indicated Prevention Approaches for FASD | p. 173 |
Characteristics of Included Studies | p. 173 |
General Characteristics | p. 173 |
Characteristics of the Populations | p. 174 |
Characteristics of the Interventions | p. 174 |
Components of the Interventions | p. 175 |
Characteristics of the Outcomes | p. 176 |
Types of Result Reported in the Individual Studies | p. 178 |
Methodological Quality of the Studies | p. 178 |
Results of Qualitative Synthesis of the Evidence | p. 180 |
Clinical Trials | p. 182 |
Observational Studies | p. 182 |
Summary of the Overall Results | p. 184 |
General Characteristics | p. 184 |
Populations | p. 185 |
Interventions | p. 185 |
Outcomes | p. 185 |
Methodological Quality of the Studies | p. 185 |
Evidence on the Effectiveness of Indicated Prevention Approaches | p. 185 |
Analysis of Publication Bias | p. 189 |
Discussion | p. 189 |
Characteristics of the Study. Populations | p. 189 |
Characteristics of the Interventions | p. 192 |
Characteristics of Study Outcomes | p. 192 |
Methodological Quality of the Studies | p. 192 |
Main Findings | p. 193 |
Universal Prevention Approaches | p. 93 |
Selective Prevention Approaches | p. 194 |
Indicated Prevention Approaches | p. 195 |
Strengths and Limitations | p. 195 |
Methodological Issues and Research Directions in the Evaluation of FASD Prevention Interventions | p. 196 |
Conclusions | p. 198 |
Acknowledgments | p. 199 |
Competing Interest | p. 200 |
Methodology | p. 200 |
Search Strategy | p. 200 |
Study Selection Process | p. 207 |
Data Extraction | p. 208 |
Methodological Quality Assessment | p. 208 |
Data Analysis and Synthesis of the Results | p. 213 |
Excluded Studies, Multiple Publications and Studies Pending Full Publication | p. 213 |
Excluded Research Studies | p. 213 |
Multiple Publications of Studies Included in the Review | p. 212 |
Studies Pending Full Publication | p. 223 |
Summary Tables of Overall Characteristics of Studies on Prevention Approaches to FASD | p. 224 |
Operational Definitions of Prevention Approaches to FASD | p. 235 |
Study Evidence Tables | p. 240 |
Characteristics of the Interventions | p. 304 |
Methodological Quality of the Studies Included in the Review | p. 320 |
References | p. 330 |
Five Perspectives on Prevention of FASD | p. 337 |
Pre-Conception Initiatives | p. 337 |
Inventory of Primary Prevention Campaigns | p. 340 |
Primary Care Physician Perspective | p. 343 |
Mentoring Programs for At Risk Mothers | p. 345 PCAP Stu |
Strength and Support: A Women's Perspective | p. 350 |
Recommendations | p. 356 |
References | p. 357 |
Appendices | p. 359 |
Abbreviations | p. 359 |
Glossary | p. 360 |
References | p. 364 |
Index | p. 365 |
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