Advance Care Planning in End of Life Care

Keri Thomas, Founder and National Clinical Lead, Gold Standards Framework Centre in End of Life Care,Ben Lobo, Consultant Physician and Geriatrician, Sherwood Forest Hospitals NHS Foundation Trust, Nottinghamshire,Karen Detering, Respiratory Physician, Respecting Patient Choices Program, Austin Hospital Melbourne, Australia

Keri Thomas is Founder and National Clinical Lead for the Gold Standards Framework Centre in End of Life Care in Shrewsbury, and Honorary Professor in End of Life Care at the University of Birmingham, UK


Ben Lobo is Consultant Physician and Geriatrician at the Sherwood Forest Hospitals NHS Foundation Trust, Nottinghamshire, and former National Clinical Lead for Advance Decisions to Refuse Treatment, UK


Karen Detering is Respiratory Physician for the Respecting Patient Choices Program at Austin Hospital Melbourne in Australia

Section 1: Introduction to Advance Care Planning
1. Overview and introduction to Advance Care Planning, Keri Thomas
2. What are the benefits of Advance Care Planning and how do we know?, Sarah Russell and Karen Detering
3. An introduction to Advance Care Planning: Practice at the frontline, Anjali Mullick and Jonathan Martin
4. Person-centred care: How does Advance Care Planning support this and what are the economic benefits?, Josie Dixon
5. Advance Care Planning and caring for an ageing population, Martin J. Vernon
6. Spiritual and ethical and aspects of Advance Care Planning, Max Watson and Mark Thomas
7. Advance Care Planning: A personal view and stories from the frontline, Tony Bonser
Section 2: Context and experience of Advance Care Planning in the UK
8. Advance Care Planning in the UK: Update on policy and practice, Claire Henry and Keri Thomas
9. 1. Advance Decisions to Refuse Treatment (ADRT) and the impact of wider legislation, Ben Lobo
10. Discussions and decisions about cardiopulmonary resuscitation, David Pitcher
11. 1. The implications of the Mental Capacity Act (MCA) 2005 for Advance Care Planning and decision making, Simon Chapman
12. Experience of use of Advance Care Planning in care homes, Maggie Stobart-Rowlands and Mandy Thorn
13. Advance Care Planning in the community, Pete Nightingale, Chris Absolon, and Scott Murray
14. Advance Care Planning in hospices and palliative care, Sarah Russell and Simon Noble
15. Advance Care Planning in hospitals, Clare Marlow, Karen Groves, and Premila Fade
16. 1. Advance Care Planning: Thinking ahead for parents, carers, children, and young people, Angela Thompson
17. Advance Care Planning and people with dementia, Karen Harrison Denning
Section 3: Experience of Advance Care Planning Internationally
18. Advance Care Planning in Australia, Karen Detering and Josephine Clayton
19. Advance Care Planning in Canada, Doris Barwich, John You, Jessica Simon, Louise Hanvey, and Cari Hoffman
20. Advance directives and Advance Care Planning: the US experience, Maria J. Silveira and Phillip Rodgers
21. Advance Care Planning in New Zealand: Our Voice, Leigh Mason and Shona Muir
22. Advance Care Planning in Germany1. : On track to nationwide implementation, Georg Marckmann, Kornelia Gotze, and Jurgen in der Schmitten
23. Advance Care Planning in an Asian Country, Irwin Clement Alphonsus Wai Hoong Chung
Section 4: Practicalities and areas of common ground
24. Communication skills and Advance Care Planning, Sarah Russell
25. 1. Advance Care Planning in chronic disease: Finding the known in the midst of the unknown, Karen Detering, Elizabeth Sutton, and Scott Fraser
26. Planning ahead in all areas, Nigel Mathers and Craig Sinclair
27. A population-based approach to end of life care and Advance Care Planning, Muir Gray, Rammya Matthews, and Keri Thomas
Appendix
1. Useful websites and resources, Keri Thomas, Ben Lobo, and Karen Detering