Cancer and the Family

, by Baider, Lea; Cooper, Cary L.; De-Nour, Atara Kaplan

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ISBN: 9780471803003 | 0471803006
Cover: Hardcover
Copyright: 6/15/2000

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The editors and authors of this second edition have succeeded in providing a refreshing and comprehensive view of the issues confronting families around the world when one of their members is diagnosed with cancer.

Contributors

xvii

Foreword

xxi

Introduction

xxiii

Lea Baider

Atara Kaplan De-Nour

SECTION I FAMILIES: THEORETICAL AND METHODOLOGICAL ISSUES

(52)

Family processes and chronic illness

(14)

Peter Steinglass

A brief overview of the family and illness clinical literature

(3)

The `deficit' perspective

(1)

The family as resource

(1)

The clinical course perspective

(1)

The impact perspective

(1)

Interventions for families---the multiple family discussion group model

(4)

Concluding comments

(5)

Family reorganization in response to cancer: a developmental perspective

(24)

Karen Weihs

David Reiss

Cancer as a threat to the life course of the family

(6)

Family legacy of relating during illness

(1)

Family relational processes based on attachment

(4)

Cancer-related transformations of attachment relationships

(5)

Conclusion

(6)

Cancer and couples---its impact on the healthy partner: methodological considerations

(12)

Lea Baider

Atara Kaplan De-Nour

Methodological problems

(4)

Sampling problems

(1)

Assessment instruments

(2)

Design of studies

(1)

The psychological reactions of couples and the factors that modify these reactions

(7)

SECTION II SOCIAL SUPPORT AND CULTURAL PERSPECTIVE

(82)

The role of family support in cancer control

(18)

Joan R. Bloom

Social support as a resource

(2)

Definition of social support

(1)

Types of support

(2)

Negative effects of social support

(1)

Social support and early cancer detection

(3)

Social support and cancer treatment

(5)

Acute stage of survival

(1)

Extended stage of survival

(1)

Permanent survival

(1)

Continuing care

(1)

Support interventions

(1)

Discussion and conclusions

(6)

A cross-cultural comparison of social support among Asian--American and Euro--American women following breast cancer

(22)

Marjorie Kagawa-Singer

Tu-Uyen Nguyen

Definitions of social support

(2)

Cross-cultural definitions of family

(1)

Culture

(1)

Variations in family structure

(1)

Communication and help seeking

(1)

Family interaction

(1)

Effects of family structure on social support when confronting cancer

(1)

Comparisons of social support for Anglo- and Asian-American women

(5)

Results

(3)

Discussion

(8)

Implications for practice and research

(6)

Culture, cancer, and the family

(16)

Carolyn Cook Gotay

What is culture, and how does it differ from ethnicity and ethnic identification?

(1)

What are culturally linked predictors of a family's experience with cancer?

(3)

International variation in cancer incidence rates

(1)

International variation in cancer mortality rates

(1)

International variation in family roles in health care

(1)

Migration, acculturation, and generational status

(1)

Historical factors

(1)

What are culturally linked mediators of a family's experience with cancer?

(3)

Attitudes towards autonomy

(1)

Desired medical communication

100

(1)

Explanatory models for cancer

101

(1)

Family structure and roles

101

(1)

Case studies of families in different cultures coping with cancer

102

(3)

Case 1

102

(1)

Case 2

103

(1)

Case 3

104

(1)

Implications for research and clinical practice

105

(2)

Need for additional attention to family issues

105

(1)

Recognition that cultural considerations are important for all patients and families

106

(1)

Need to develop culturally appropriate supportive interventions for cancer patients and their families

107

(1)

Conclusion

107

(4)

The role of Japanese families in cancer care

111

(8)

Toshinari Saeki

Tomoyuki Mantani

Shigeto Yamawaki

Yosuke Uchitomi

Patient-family-doctor relationships in Japan

111

(2)

Truth-telling issues in cancer care

111

(1)

The Japanese custom of mourning for the dead

112

(1)

Brief reports of families in distress

113

(1)

Case 1: Mr A, aged 26, single male

113

(1)

Case 2: Mrs B, aged 64, married woman

114

(1)

Review of the literature

114

(2)

From descriptive studies

114

(1)

Methodology of family assessment

115

(1)

Directions for future research

116

(3)

Beliefs about cancer causation and their influence on family function

119

(16)

Maria Die-Trill

Development and description of causal beliefs about cancer

120

(5)

Incidence of causal attributions in cancer

125

(1)

Causal attributions and psychosocial adjustment to illness

126

(1)

Causal attributions in cancer and the family

126

(4)

Discussion

130

(5)

SECTION III PSYCHOLOGICAL INTERVENTIONS WITHIN THE FAMILY

135

(64)

Preventing affective disorders in partners of cancer patients-an intervention study

137

(18)

Carolyn Pitceathly

Peter Maguire

Background

137

(9)

Factors related to adjustment difficulties

138

(1)

Communication

139

(2)

Intervention studies

141

(1)

Randomized, controlled studies

142

(2)

Affective disorders amongst partners of cancer patients

144

(1)

The role of confiding

145

(1)

Developing an intervention

146

(5)

The partners' response

147

(1)

Case study 1

147

(1)

Case study 2

148

(1)

Case study 3

149

(1)

Summary

150

(1)

Conclusions

151

(4)

Psychosocial adaptation following treatment: a family systems perspective on childhood cancer survivorship

155

(20)

Jamie Ostroff

Stephanie Ross

Peter Steinglass

Psychosocial adaptation following treatment of childhood cancer

156

(5)

Psychological adjustment of childhood cancer survivors

156

(1)

Factors associated with post-treatment adjustment of childhood cancer survivors

157

(4)

The Ackerman/Memorial Sloan-Kettering Multiple Family Discussion Group program

161

(9)

Rationale for the MFDG program

161

(1)

Conceptual model underlying the MFDG

162

(3)

Content and structure of the MFDG meetings

165

(3)

Selection and training of discussion group leaders

168

(1)

Efficacy of MFDGs

168

(1)

Barriers to implementation

169

(1)

Summary

170

(5)

A model of family-centered intervention during palliative care and bereavement: focused family grief therapy (FFGT)

175

(24)

David W. Kissane

A family vignette

175

(2)

Our studies of family functioning during palliative care and bereavement

177

(2)

Screening for families at greater risk

178

(1)

Focused family grief therapy (FFGT): a model of intervention for palliative care

179

(7)

Goals of FFGT

179

(1)

Assessment phase of FFGT

180

(1)

The focused treatment in FFGT

180

(1)

Common themes that arise during FFGT

181

(4)

Consolidation and termination of FFGT

185

(1)

Challenges in the delivery of FFGT

186

(2)

Problems with engagement

186

(1)

Limits to possible therapeutic goals

186

(1)

Therapy in the family home

187

(1)

Sustained focus during the therapy

187

(1)

Living with the uncertainty of prognosis

187

(1)

Specific therapist interventions

188

(1)

Illustrative families that our team has treated

189

(3)

The family with adopted children

189

(1)

The family with an alcoholic father

189

(2)

The family burdened by double cancer

191

(1)

The family with a depressed adolescent

191

(1)

Discussion

192

(7)

SECTION IV THE CHILD'S PERCEPTION OF A PARENT'S ILLNESS

199

(56)

Blowing away the myths about the child's experience with the mother's breast cancer

201

(22)

Frances Marcus Lewis

Lynn C. Behar

Kathryn Hoehn Anderson

Mary Ellen Shands

Ellen H. Zahlis

Emily Darby

Janet A. Sinsheimer

Families as nurturant systems of care for children: our assumptions

202

(1)

Data-based challenges to the myths

203

(2)

Myth 1-families understand the child's experience with the mother's breast cancer

205

(1)

Myth 2-families are able to assist the child through the mother's breast cancer

206

(3)

Myth 3-children feel comfortable talking with their parent(s) about the breast cancer

209

(1)

Myth 4-the mother's depressed mood and anxiety are filtered and managed without affecting the child

210

(1)

Myth 5-children are able to interpret the breast cancer in the least distressful ways on their own

211

(1)

Myth 6-compromised parenting in one parent can be compensated by the parenting practices of the other parent

212

(1)

Myth 7-tension in the marriage from the illness is a private matter between the diagnosed mother and her spouse

213

(1)

Needed elements for programs and services

213

(3)

Assist the family to be responsible to the child: engage the child's view

214

(1)

Assist the family to balance the illness-work of the family with the family's life as a family

214

(1)

Stabilize comfortable household routines and patterns

215

(1)

Assist mothers with their depressed mood and anxiety

216

(1)

Concluding remarks

216

(7)

Correlates of self-esteem among children facing the loss of a parent to cancer

223

(16)

Karolynn Siegel

Victoria H. Raveis

Daniel Karus

Methods

225

(1)

Measures

226

(2)

Duration of illness

226

(1)

Characteristics of the well parent

226

(1)

Characteristics of the study child

226

(1)

Self-esteem

227

(1)

Results

228

(5)

Sample

228

(1)

Self-esteem

229

(4)

Discussion

233

(6)

A different normal: reactions of children and adolescents to the diagnosis of cancer in a parent

239

(16)

Andrea Farkas Patenaude

Presenting a diagnosis

240

(1)

Stages in children's understanding of illness

241

(3)

Children aged 2 and under

241

(1)

Children aged 3-6

242

(1)

Children aged 7-13

242

(1)

Adolescents

243

(1)

Young adults

244

(1)

Preparing parents for talking to their children

244

(1)

What children want to know

244

(1)

Impact on the child

245

(3)

Gender

246

(1)

Maintaining normalcy/social support

247

(1)

Special issues

248

(2)

Divorce and single parenting

248

(1)

Other stressors

249

(1)

Hereditary predisposition

249

(1)

Resilience

249

(1)

Indicators that more help is needed

250

(1)

Impact on the parent with cancer

250

(1)

Need for more research

251

(4)

SECTION V DYNAMIC CHANGES IN FAMILIES WITH A CHILD WITH CANCER

255

(54)

Factors contributing to the psychological adjustment of parents of pediatric cancer parents

257

(16)

Josette E.H.M. Hoekstra-Weebers

Jan P.C. Jaspers

Ed C. Klip

Willem A. Kamps

The effect of a child's cancer on parental functioning

260

(1)

Psychological adjustment and stable variables

261

(2)

Demographic variables

261

(1)

Illness-related variables

262

(1)

Prior and concurrent life events

262

(1)

Personality

262

(1)

Parental adjustment and changeable variables

263

(4)

Coping

263

(2)

Social support

265

(1)

Marital satisfaction

266

(1)

Interventions for parents

267

(1)

Implications for future research

268

(5)

`My family and I are in this together': children with cancer speak out

273

(16)

Barbara M. Sourkes

Renee Proulx

Review of the literature

274

(3)

The child's experience of the illness

274

(1)

Adjustment of the child with cancer

275

(1)

The child in the family

276

(1)

Clinical issues

277

(7)

The impact of diagnosis

277

(3)

Family functioning when a child has cancer

280

(3)

Sibling relationship

283

(1)

Conclusion

284

(5)

Maternal problem-solving training in childhood cancer

289

(20)

Michael J. Dolgin

Sean Phipps

Family adjustment to childhood cancer

290

(3)

Adaptation of children with cancer

290

(1)

Adaptation of healthy siblings

291

(1)

Family factors, maternal adjustment, and child adaptation

292

(1)

Problem-solving skills training

293

(2)

Bright IDEAS: maternal PSST in childhood cancer

295

(6)

Conceptual model

295

(1)

Program format and guidelines

295

(2)

Treatment considerations and process issues

297

(4)

Case study

301

(2)

Evaluation of PSST in mothers of children with cancer

303

(1)

Conclusion

303

(6)

SECTION VI SEXUALITY: PERCEPTION OF SELF

309

(42)

Sexual self-concept for the woman with cancer

311

(44)

Barbara L. Andersen

Deanna M. Golden-Kreutz

Common malignancies and associated sexual morbidity

312

(6)

Breast

312

(2)

Colon and rectum

314

(1)

Lung

314

(1)

Gynecologic tumors

315

(3)

Predicting risk for sexual morbidity

318

(4)

Medical contributors

318

(2)

Sexual schema and other psychological contributors

320

(2)

Interventions for sexual morbidity

322

(8)

A clinical process model of sexual dysfunction following treatment

323

(3)

Intervention strategies

326

(4)

Summary

330

(25)

Deciding to have children after cancer

355

Leslie R. Schover

Does the cancer experience decrease the wish to have children?

335

(2)

Does the cancer experience make survivors better parents?

337

(1)

The pain of infertility after cancer

337

(1)

Making choices about fertility at the time of diagnosis

338

(2)

Women's worries about the safety of pregnancy

340

(1)

Concerns about the health of children born after cancer

341

(1)

Concerns about children's risk for cancer

342

(1)

Making choices about children in inherited syndrome families

342

(2)

Adoption as an option for family building

344

(1)

Third-party reproduction after cancer

345

(1)

Conclusions

346

(5)

SECTION VII GENETICS: FAMILIAL RISK

351

(74)

Communication of individualized cancer risk information within the family context

353

(20)

Joan L. Bottorff

Pamela A. Ratner

Joy L. Johnson

Mary K. McCullum

The context of sharing cancer risk information

354

(1)

The individual context

354

(3)

The context of the health care professional

355

(1)

The societal context

356

(1)

The Tyler family: a case study

357

(4)

Formulation of risk perception

361

(3)

The impact of risk information

364

(4)

Psychological sequelae for individuals and their families

365

(2)

Influences on health behavior

367

(1)

Conclusion

368

(5)

Genetic counseling for cancer: a family issue

373

(16)

Eveline M. A. Bleiker

Neil K. Aaronson

Genetic counseling and cancer: where are we now?

373

(2)

Hereditary breast and ovarian cancer (HBOC)

374

(1)

Colorectal cancer

374

(1)

Who attends a family cancer clinic?

375

(1)

The procedure of genetic counseling: a family issue

376

(1)

The psychological impact of genetic counseling

377

(2)

General and specific psychological distress

377

(1)

Family involvement

377

(1)

Feelings of worry and guilt

378

(1)

Practical implications

378

(1)

A case study

379

(2)

Implications for psychosocial services

381

(2)

Directions for future research

383

(6)

Familial cancer and genetics: psychosocial and ethical aspects

389

(16)

Kathryn M. Kash

Mary Kay Dabney

Jimmie C. Holland

Michael P. Osbourne

Daniel G. Miller

Research study

390

(3)

Results

391

(1)

Genetic testing issues

392

(1)

Conclusions from study

392

(1)

Ethical principles of genetic testing

393

(1)

Case studies

394

(6)

Summary

400

(5)

Women at increased risk for breast cancer: family issues, clinical treatment, and research findings

405

(20)

David K. Wellisch

Nangel Lindberg

Literature review

405

(3)

1996

405

(1)

1997

406

(1)

1998

407

(1)

Structure of the Revlon-UCLA Breast Center High Risk Clinic

408

(2)

Data relevant to family issues with high-risk patients

410

(8)

Demographic information from the High Risk Clinic

410

(5)

Implications of data

415

(3)

Case vignettes

418

(4)

Vignette 1

418

(1)

Clinical issues

419

(1)

Vignette 2

420

(1)

Clinical issues

420

(1)

Vignette 3

421

(1)

Clinical issues

422

(1)

Summary

422

(3)

SECTION VIII TERMINAL ILLNESS AND SYSTEMS OF BELIEF

425

(50)

The family in terminal illness

427

(16)

Simon Wein

The family as the treatment unit

428

(1)

Family: classification, evaluation and assessment

429

(1)

Information and communication

430

(2)

Practical issues and interventions

432

(4)

Dying and death

436

(2)

Bereavement

438

(1)

Conclusion

439

(4)

Religion, cancer, and the family

443

(14)

Bernard Spilka

Scott Hartman

Stress, cancer, and the immune system

444

(1)

Responding to cancer as post-traumatic stress syndrome

444

(1)

The role of religion

445

(3)

What religion does

445

(1)

Religion as a coping mechanism in dealing with cancer

445

(2)

Religion as a stressor and a counter to stress

447

(1)

Institutional religion and cancer

448

(1)

Cancer, the family, and religion

448

(4)

The family as a social system

448

(1)

Cancer and spousal relations

448

(1)

When a parent has cancer

449

(1)

The child as patient

449

(3)

Conclusions

452

(5)

Coping with cancer: religion as a resource for families

457

(18)

S. Bryant Kendrick

Harold G. Koenig

Religion and coping with cancer: the experience of patients

457

(3)

Religion and coping with cancer: the experience of the family as revealed in research

460

(3)

What impact does belonging to a religious community have on the family members of a person diagnosed with cancer?

463

(5)

Religion and family coping: practical examples from clinical practice

468

(3)

Conclusions

471

(4)

SECTION IX MEDICAL ETHICS AND COMMUNICATION

475

(60)

Patient-family communication with physicians

477

(20)

Christina G. Blanchard

Terrance L. Albrecht

John C. Ruckdeschel

Toward a partnership model of the physician-patient relationship

478

(8)

Does the partnership model fit the cancer patient-physician relationship?

480

(3)

The cancer patient-physician relationship and the decision to accrue to clinical trails

483

(1)

The relationship between physician behavior and cancer patient satisfaction

483

(2)

Impact of patient and physician styles on the relationship

485

(1)

Summary and implications

486

(1)

Cancer as a family illness

486

(2)

The patient-family-physician/team relationship

488

(4)

The impact of family presence on the patient-physician relationship

490

(1)

The special case of children/adolescents

491

(1)

Future directions

492

(5)

Cancer, medical ethics, and the family

497

(16)

Carl Christopher Hook

The nature and goals of medicine and cancer

498

(1)

The principles of medical ethics and the importance of family

498

(2)

The fundamental virtues of medicine

500

(1)

Communicating bad news and truth telling

501

(1)

Surrogate decision making

502

(2)

Resolving ethical disputes

504

(1)

Medical futility

505

(2)

Conflict between the patient and the family

507

(1)

Confidentiality

508

(5)

The role of the family in the ethical dilemmas of oncology

513

(22)

Antonella Surbone

A brief history of Western medical ethics and its principles

513

(3)

The patient-doctor-family relationship: at the core of medical ethics

516

(1)

Five cases for ethical discussion

517

(14)

Case A

517

(6)

Case B

523

(5)

Case C

528

(1)

Case D

529

(2)

Case E

531

(1)

Concluding remarks

531

(4)

Index

535

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Cancer and the Family

Summary

Table of Contents

Supplemental Materials

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Cancer and the Family

Summary

Table of Contents

Supplemental Materials

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