A Companion to Genethics

The completion of the human genome project in 2000 dramatically emphasized the imminent success of the genetic revolution. The ethical and social consequences of this scientific development are immense. From human reproduction to life-extending therapies, from the impact on gender and race to public health and public safety, there is scarcely a part of our lives left unaffected by the impact of the new genetics. A Companion to Genethics is the first substantial study of the multifaceted dimensions of the genetic revolution and its philosophical, ethical, social, and political significance. It brings together the best and most influential contemporary writing about genethics. Newly commissioned essays from prominent figures in the current debate provide a wide-ranging and fascinating scholarly analysis of all the issues that arise from this explosive science.

Justine Burley is Adjunct Associate Professor at the National University of Singapore. Most recently, she was a Lecturer at the University of Oxford. She served as Fellow of the Institute of Medicine, Law and Bioethics (1995-1998) at Oxford and as Simon Fellow at the University of Manchester (1998-2002). She is editor of The Genetic Revolution and Human Rights (1999) and Dworkin and His Critics (Blackwell, 2004).

John Harris is Sir David Alliance Professor of Bioethics at the University of Manchester where he is also Director of the Centre for Social Ethics and Policy and Academic Director of the Institute of Medicine, Law and Bioethics. He is the author of Violence and Responsibility (1980), The Value of Life (1985), Wonderwoman and Superman (1992), and Clones, Genes and Immortality (1998). He has also co-edited Experiments on Embryos (1990), Ethics and Biotechnology (1994), and The Future of Human Reproduction (1998).

List of Contributors	p. viii
Foreword	p. xiv
Acknowledgments	p. xvi
Introduction	p. 1
Genetics: Setting the Scene
Stem Cells	p. 7
Gene Therapy for Neurological Disorders: New Therapies or Human Experimentation?	p. 18
Cloning in Biology and Medicine: Clinical Opportunities and Ethical Concerns	p. 33
The Genetics of Old Age	p. 43
Genetic Research
The Ethical Legacy of Nazi Medical War Crimes: Origins, Human Experiments, and International Justice	p. 53
Biotechnology and Animals: Ethical Issues in Genetic Engineering and Cloning	p. 70
The Role of Informed Consent in Genetic Experimentation	p. 82
Testing Children and Adolescents	p. 92
Genetic Testing of Children: Who Should Consent?	p. 114
Mapping the Human Genome and the Meaning of "Monster Mythology"	p. 127
Gene Manipulation and Gene Selection
The Moral Status of the Gene	p. 147
The Ethical Use of Human Embryonic Stem Cells in Research and Therapy	p. 158
Preimplantation Genetic Diagnosis and Embryo Selection	p. 175
Individual Autonomy and Genetic Choice	p. 191
Cloning and Public Policy	p. 206
Sex Selection: The Feminist Response	p. 216
Creating Perfect People	p. 229
Genotype, Phenotype, and Justice
Genetics and Personal Identity	p. 245
Genetic Determinism and Gene Selectionism	p. 253
The Darwin Wars and the Human Self-image	p. 271
Religion and Gene Therapy: The End of One Debate, the Beginning of Another	p. 287
"Race," Genetics, and Human Difference	p. 302
Self-ownership, Begetting, and Germline Information	p. 317
Justice, Genetics, and Lifestyles	p. 325
Commercial Exploitation of the Human Genome	p. 334
Ethics, Law, and Policy
Forensic DNA Typing	p. 349
Privacy and Genetics	p. 364
DNA Banking: A Retrospective-prospective	p. 379
Genetic Difference in the Workplace	p. 387
The Insurance Market and Discriminatory Practices	p. 398
Legal and Ethical Issues in Biotechnology Patenting	p. 408
Are Genes Inventions? An Ethical Analysis of Gene Patents	p. 420
Property, Patents, and Genetic Material	p. 438
Genetic Screening from a Public Health Perspective: Three "Ethical" Principles	p. 455
Afterword	p. 465
Index	p. 470
Table of Contents provided by Ingram. All Rights Reserved.

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A Companion to Genethics

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