Having Epilepsy
, by Joseph Schneider
- ISBN: 9780877223184 | 0877223181
- Cover: Nonspecific Binding
- Copyright: 1/28/2009
Joseph W. Schneider is Associate Professor of Sociology at Drake University Peter Conrad is Assistant Professor of Sociology at Brandeis University
| Preface | p. xi |
| The Sociology of Illness | p. 3 |
| Medicine, Sociology, and Illness: Outsider Perspectives | p. 4 |
| The Experience of Illness: Toward an Insider's Perspective | p. 9 |
| Studying Epilepsy: Data, Sample and Method | p. 15 |
| Outline of the Book | p. 19 |
| The Historical and Social Realities of Epilepsy | p. 21 |
| Historical Notes | p. 22 |
| Three Myths About Epilepsy | p. 29 |
| Epilepsy Is an Inherited Disease | p. 31 |
| Epilepsy Creates Psychopathology and Leads to Mental Illness | p. 33 |
| Epilepsy Causes Aggression and Crime | p. 39 |
| The Social Response to Epilepsy: A Stigmatized Illness | p. 43 |
| The Medical Reality of Epilepsy | p. 47 |
| Diagnosis | p. 47 |
| Etiology | p. 50 |
| Epidemiology | p. 50 |
| Prognosis and Treatment | p. 51 |
| Discovery | p. 53 |
| Definitions, Diagnosis, and Discovery | p. 54 |
| Making the Strange Familiar: Lay Definitions | p. 55 |
| Medical Uncertainty: Delaying Discovery | p. 59 |
| Self Diagnosis and Pessimistic Accounts | p. 64 |
| The Impact of a Medical Label | p. 69 |
| The Other Side of Care: Parents and Family Life | p. 77 |
| Parents, Children, and Epilepsy | p. 79 |
| Setting the Stage: Open and Closed Parental Styles | p. 82 |
| The Open Style: Epilepsy as a "Normal" Medical Problem | p. 83 |
| The Closed Style: A Route to Disability and Dependence | p. 86 |
| Worry, Protection, and Control | p. 95 |
| Seizures and Self | p. 103 |
| Having a Seizure: Losing Control | p. 104 |
| Seizures as Social Events: Trouble for Others | p. 109 |
| Embarrassment | p. 109 |
| "Call an Ambulance": Seizures as Medical Emergencies | p. 114 |
| Seizures, Responsibility, and Social Competence | p. 118 |
| Controlling Seizures, Protecting Face | p. 125 |
| Toward Regaining Control: Seizure Theories and Preventive Work | p. 126 |
| Seizure Theories | p. 128 |
| Preventive Work | p. 132 |
| Some Lines of Defense | p. 136 |
| Anticipatory Defenses | p. 136 |
| Emergency Measures | p. 139 |
| After a Seizure: Attending to Face | p. 141 |
| The Problem of Stigma: Managing Information | p. 147 |
| Stigma and Epilepsy | p. 149 |
| The Perception of Stigma | p. 151 |
| Strategies of Selective Concealment | p. 154 |
| Instrumental Telling: Disclosing as a Management Strategy | p. 158 |
| Ties That Bind and Free: The Paradox of Medical Care | p. 165 |
| Seeking Information | p. 166 |
| Information: A Scarce and Valuable Resource | p. 168 |
| Obtaining Information | p. 175 |
| Gaining Control | p. 178 |
| The Meaning of Medications | p. 181 |
| A Ticket to Normality | p. 185 |
| Taking Medications | p. 187 |
| Self-Regulation: Grounds for Changing Medication Practice | p. 190 |
| Social Meanings of Regulating Medication Practice | p. 193 |
| Testing | p. 194 |
| Controlling Dependence | p. 196 |
| Destigmatization | p. 199 |
| Practical Practice | p. 201 |
| Asserting Control | p. 202 |
| Having Epilepsy: The Experience and Control of Illness | p. 205 |
| Illness and Epilepsy: General Concerns and Particular Insights | p. 207 |
| Managing Uncertainty | p. 207 |
| Knowledge of Disease and Illness as a Resource | p. 209 |
| Relationships with Medical Professionals | p. 211 |
| Managing Regimens | p. 212 |
| Symptom and Crisis Control | p. 214 |
| Family Relationships | p. 215 |
| Friends and Associates | p. 217 |
| Illness, Social Meanings, and Identity | p. 220 |
| Suggestions for Change | p. 221 |
| Changes in Society: The Public Image and Control of Epilepsy | p. 223 |
| Changes in Medical Practice: Doctors and Patients as Partners | p. 227 |
| Changes in the Life: Owning Epilepsy and Realizing Self | p. 229 |
| Appendix | p. 233 |
| Doing the Study: Issues, Problems, and Strategies | p. 233 |
| Studying the Experience of Illness | p. 234 |
| Who to Study: Sampling | p. 236 |
| How to Collect Data: Interviewing | p. 240 |
| Making Sense of the Data: Analysis | p. 241 |
| Roads Not Taken | p. 244 |
| Interview Guide | p. 246 |
| Letter Passed to Anonymous People with Epilepsy | p. 251 |
| References | p. 253 |
| Index | p. 269 |
| Table of Contents provided by Syndetics. All Rights Reserved. |
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