A History of AIDS Social Work in Hospitals: A Daring Response to an Epidemic

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ISBN: 9780789015877 | 0789015870
Cover: Nonspecific Binding
Copyright: 10/9/2003

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This one-of-a-kind book presents firsthand historical perspectives from hospital social workers who have cared for HIV/AIDS patients from the beginning of the epidemic in the early 1980s until the present. The contributors recount their personal and clinical experiences with patients, families, significant others, bureaucracies, and systems during a time of fear, challenge, and extreme caution. Their experiences illustrate the evolution of social work as the development of new programs and treatments increased the life span of HIV/AIDS patients. Book jacket.

About the Editors

xiii

Contributors

Acknowledgments

xxv

Introduction

xxvii

Barbara Willinger

Alan Rice

SECTION I: MEDICAL OVERVIEW

Chapter 1. An Adult Infectious Disease Doctor's Encounter with HIV/AIDS

(10)

Alan Berkman

Chapter 2. A Pediatrician's Encounter with HIV/AIDS

(8)

Elaine J. Abrams

SECTION II: UNCHARTED TERRITORY

Chapter 3. Response to the AIDS Epidemic: Metropolitan New York

(14)

Esther Chachkes

Elaine Ehrlich

Mera Eisen

Sister Rosemary Moynihan

Chapter 4. The Emergence of Social Workers in the AIDS Epidemic: SWAN-Social Work AIDS Network, San Francisco

(6)

Daniel R. Ostrow

The Emergence of SWAN

(2)

The Growth of SWAN

(1)

The Politicalization of SWAN

(3)

Chapter 5. The South Carolina Experience

(10)

Cynthia Cannon Poindexter

Organizational Genesis

(1)

Organizational Practice and Culture

(1)

Daily Life in an Early ASO

(2)

Organizational Challenges

(1)

The Past Is Present

(1)

Family Secrets

(2)

Conclusion

(2)

Chapter 6. Social Work in HIV Care: A Labor of Love in Philadelphia

(8)

Patricia A. Stewart

Chapter 7. The New York State Response: Case Management for Persons Living with HIV and AIDS

(12)

Jay Freedman

Development of COBRA Community Follow-Up

(1)

Measuring Case Management Outcomes

(3)

The New Era of Managed Care

(1)

The Future of Case Management in New York State

(3)

Chapter 8. The New York City Division of AIDS Services

(12)

Anita Vitale

Background

(1)

The Model

(1)

The Program

(1)

The Staff

(1)

The Clients

(2)

Housing

(2)

Change

(4)

Chapter 9. A Case of Serendipity: A Brief History of the Early Years of the Annual National Conference on Social Work and HIV/AIDS

(12)

Vincent J. Lynch

Introduction

(2)

Can This Idea Work?

(2)

The Conference Becomes a Reality

(3)

Can This Conference Continue?

(2)

A Look at 1992 to the Present

(1)

Concluding Thoughts

(2)

Chapter 10. Motivating the System from Within

(8)

Barbara Willinger

SECTION III: THE HEYDAY

Chapter 11. From Medical Social Work to the Constant Object: The Long and Winding Road

103

(16)

Diane Pincus Strom

Chapter 12. You Cannot Make This Stuff Up

119

(8)

Alan Rice

Barbara Willinger

Chapter 13. Rethinking Group Process-Or Do We?

127

(6)

Alan Rice

Chapter 14. HIV Support Groups in a Hospital Setting

133

(10)

Charlene Turner

Group Formation

133

(1)

Group Facilitation

134

(1)

Group Themes and Issues

135

(8)

Chapter 15. Group Intervention in the Early Days of the GRID Epidemic: A Reflection of One Social Worker's Personal Experience

143

(12)

Lori Wiener

Introduction

143

(2)

Common Emotional Reactions

145

(2)

Group Intervention

147

(5)

Yesterday, Today, and Tomorrow

152

(3)

Chapter 16. The Missing Support: Group Interventions with AIDS Patients

155

(6)

Barbara Willinger

The Existing Groups

156

(1)

Program Expansion

157

(1)

Group Expansion

157

(2)

The Absence of Need

159

(2)

Chapter 17. Twenty Years of the Epidemic: A Social Work Administrator's Personal Perspective

161

Susan W. Haikalis

1981 to 1985-The Crisis to Be, Still Unknown (3,500 Cases Worldwide by 1983)

161

(3)

1985 to 1995-A Decade of Hope (10,000 AIDS Cases in the United States in 1985)

164

(4)

1995 to the Present-Living with Reality and Coping with New Challenges (500,000 AIDS Cases in the United States in 1995)

168

Chapter 18. Supervising Pediatric HIV/AIDS Case Managers: Lessons Learned

111

(72)

David Strug

Introduction

171

(1)

Background

172

(1)

The Supervisory Model

173

(6)

Conclusions

179

(4)

Chapter 19. Social Work with Hospitalized AIDS Patients: Observations from the Front Lines of an Inner-City Hospital

183

(16)

Barbara Willinger

Martha Powers

Chris Carlson

Lorna Andria Lee

Mary Beaudet

Miriam Bernson Adams

John Kleinschmidt

Harper Model: Responses and Vignettes

184

(5)

A Model of Hospital AIDS Work

189

(5)

Conclusion

194

(5)

SECTION IV: THE DECLINE/THE FUTUREWHAT DOES IT LOOK LIKE?

Chapter 20. Social Work, New York State AIDS Centers, and Special Needs Plans

199

(4)

Eli Camhi

Chapter 21. HIV/AIDS and Social Work Practice in Rural North Carolina: A Retrospective Account

203

(10)

Devin L. Griffith

Introduction

203

(1)

Community and Health Care Provider Reactions

204

(2)

Practice Issues

206

(2)

Perspectives on Support Resources

208

(2)

Professional Awareness and Future Practice Considerations

210

(3)

Chapter 22. Hospital Social Work with HIV/AIDS Patients to 1995: Death, Dying, Layoffs, and Managed Care

213

(8)

Chris Carlson

Chapter 23. Acute Care: Personal Reflections on Providing Social Work Interventions to Patients with HIV/AIDS

221

(8)

Matthew Rofofsky

Chapter 24. Social Work in an Interdisciplinary HIV/AIDS Program

229

(10)

Holly H. Dando

Charles J. Finlon

The Team

230

(1)

Funding

231

(1)

Staffing

231

(1)

Communication

232

(1)

Committees

233

(1)

Recent Growth

234

(1)

Clinic Structure

234

(1)

Substance Abuse

235

(1)

Groups

236

(1)

Concrete Services

236

(2)

Celebration

238

(1)

The Future

238

(1)

Chapter 25. The Integration of a Permanency Planning Program

239

(2)

Dina Franchi

Chapter 26. A Personal Journey to Improve Access to HIV-Related Mental Health Services

241

(14)

Nan O'Connor

Strategies Toward Improving Mental Health Access

248

(1)

Achieving the Goal

249

(2)

Treatment Groups

251

(1)

Problems of the Psychiatric Patient

251

(1)

Treatment Focus Shift

252

(3)

Chapter 27. Revisiting the "Lazarus Syndrome"

255

(8)

Mary Tucker

New Issues and Challenges

256

(1)

Social Work Responses to These Challenges

257

(6)

Chapter 28. A Dialogue About The Changing Face of Service Delivery and Supervision

263

(14)

Susan C. Rucker

Margaret E. Piazza

Development of AIDS Social Work

265

(2)

The Current Climate

267

(1)

Social Work Response to Development in Care

268

(2)

Funding and Program Development

270

(2)

The Impact of Managed Care

272

(1)

Supervision

273

(4)

Chapter 29. The Challenges of Working with Perinatally Infected Adolescents: Clinical and Concrete Possibilities

277

(12)

Matthew Feldman

Perinatally Infected Adolescents

277

(1)

Adolescent Development

278

(1)

Families with Perinatally Infected Adolescents

279

(1)

Clinical Challenges and Nonadherence

279

(5)

A Look Toward the Future

284

(5)

SECTION V: UNIQUE EXPERIENCES

Chapter 30. The Development of a Custody Planning Program for HIV-Affected Families

289

(16)

Sally Mason

Development of the Program-1990 to 1992

290

(2)

Program Concepts and Features

292

(2)

Facilitators to Implementation

294

(1)

Barriers to Implementation

295

(2)

Ten Years Later

297

(3)

The Role of Hospital Social Workers in Custody Planning

300

(5)

Chapter 31. HIV/AIDS Case Management in the ER: A Link to Continuity of Care

305

(10)

Lisa Chapa

Introduction

305

(2)

Case Finding in the ESD

307

(1)

HIV ER Case Manager Roles

308

(4)

Conclusion

312

(3)

Chapter 32. The Evolution of HIV Case Management Standards for Sonoma County

315

(14)

Kevin Farrell

Historical Background

315

(2)

The Beginning of Change

317

(3)

New Innovations

320

(9)

Chapter 33. Telling the Social Work Story for Survival

329

(16)

Darrell P. Wheeler

When Compassion and Commitment Are Not Enough: The Dilemma of HIV/AIDS Social Work Services

330

(1)

The Need to Tell Our Stories: Documenting for Survival

331

(1)

Telling Our Stories is More Than "Storytelling": The Three Ws

332

(7)

Case Example

339

(3)

Conclusion

342

(3)

Chapter 34. Afterword

345

(4)

Barbara Willinger

Index

349

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A History of AIDS Social Work in Hospitals: A Daring Response to an Epidemic

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Table of Contents

Supplemental Materials