Impact of Genetic Hearing Impairment

"This book examines the social and psychological effects of genetic deafness, hearing impairment and the genetic interventions associated with them. The contributors present informed views within the rapidly changing field of genetic intervention from medical, psychological, sociological and political perspectives. The book also includes two autobiographical chapters by contributors who outline the impact genetic hearing impairment and genetic deafblindness has had on their lives." "Reflecting the enormous developments in the area over the last 20 years, this is an invaluable resource for clinicians, teachers, politicians and all professionals involved with people with hearing impairments."--BOOK JACKET.

Dafydd Stephens FRCP, is Honorary Professor of Audiological Medicine at Cardiff University, Wales, UK. Sophia E. Kramer, PhD, is Senior Researcher and Psychologist at the Department of E.N.T. / Audiology / EMGO Institute for Health and Care Research at the VU University Medical Centre in Amsterdam, the Netherlands.

List of contributors

vii

Preface

xi

Acknowledgements

xv

Future perfect: social aspects of genetics and deafness

1

(10)

Lesley Jones

Parents' attitudes towards genetic testing and the impact of deafness in the family

11

(43)

Anna Middleton

The International Classification of Functioning, Disability and Health as a conceptual framework for the impact of genetic hearing impairment

54

(14)

Dafydd Stephens

Berth Danermark

A common methodology for reviewing the impact of hearing impairment

68

(5)

Berth Danermark

Sophia Kramer

Dafydd Stephens

The impact of hearing impairment in children

73

(33)

Dafydd Stephens

A review of the psychosocial effects of hearing impairment in the working-age population

106

(31)

Berth Danermark

The psychosocial impact of hearing loss among elderly people: a review

137

(28)

Sophia Kramer

The impact of combined vision and hearing impairment and of deafblindness

165

(30)

Kerstin Moller

The effects of otosclerosis

195

(6)

Nele Lemkens

Psychosocial aspects of neurofibromatosis type 2

201

(18)

Wanda Neary

Richard Ramsden

Gareth Evans

Michael Baser

Moving forward: a life of changes

219

(17)

Patricia Lago-Avery

My genetic deafness

236

(6)

Jill Jones

Glossary

242

(3)

Index

245

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Impact of Genetic Hearing Impairment

Summary

Author Biography

Table of Contents

Supplemental Materials