Oxford Textbook of Palliative Social Work

This comprehensive, evidence-informed text provides clinicians, researchers, policy-makers and academicians, with content to inform and enrich the guidelines recommended by the National Consensus Project and the National Quality Forum Preferred Practices. It is designed to meet the needs of health social work professionals who seek to provide culturally sensitive biopsychosocial-spiritual care for patients and families living with life-threatening illness. Edited by two of the leading social work clinician-researchers in the US, this text serves as the definitive resource for practicing clinicians and fulfills the need for social work faculty who wish to complement general health care texts with information specific to palliative and end-of-life care.

Terry Altilio, MSW, ACSW, LCSW is Coordinator of Social Work for the Department of Pain Medicine and Palliative Care at Beth Israel Medical Center in New York City. In addition to direct work with patients and families, she has published and lectured on topics such as pain management, ethics, palliative care, and psychosocial issues in end of life. She received a Project on Death in America Social Work Leadership award to establish a social work post graduate fellowship and the Social Work Network in End-of-Life and Palliative Care, an e-mail discussion group that currently networks over 500 social workers. In 2003, she received the Social Worker of the Year award from the Association of Oncology Social Work and is a Mayday Pain and Society Fellow.

Shirley Otis-Green, MSW, ACSW, LCSW, OSW-C is a licensed clinical social worker and Senior Research Specialist in Nursing Research and Education at the City of Hope in Duarte, California. Her clinical work, research, presentations and publications focus on transdisciplinary palliative care and integrated symptom management with a special emphasis on underserved populations. Shirley is the Principal Investigator of two National Cancer Institute-funded grants. She received a Social Work Leadership Award from the Project on Death in America and is a Mayday Pain and Society Fellow. Shirley received her Master of Social Work Degree from the University of Hawaii and is currently enrolled in a doctoral program in palliative care at Lancaster University in Great Britain.

Foreword by Betty R. Ferrell
Foreword by Kathleen M. Foley
Foreword by Russell K. Portenoy

Preface: We're not in Kansas Anymore - Terry Altilio and Shirley Otis-Green

Dedication

Acknowledgments

Contributors

Section 1
Historical Context
1.Social Work and Palliative Care: The Early History - Dame Cicely Saunders
2.Palliative Social Work: An Historical Perspective - Bernice Catherine Harper
3.Defining Social Work's Role and Leadership Contributions in Palliative Care - Susan Blacker and Grace H. Christ
4.Guess Who's Coming to Dinner? The Emerging Identity of Palliative Social Workers - Philip C. Higgins

Section 2
Social Work Practice: Setting Specific
5.Palliative Care Consultation - Colleen M. Mulkerin
6.Palliative Social Work in the Intensive Care Unit - Andrew J. McCormick
7.Palliative Social Work in the Emergency Department - Robin Rudy Lawson
8.Social Work and Palliative Care in Hospice - Sherri Weisenfluh
9.Pediatric Hospice and Palliative Care: The Invaluable Role of Social Work - Stacy F. Orloff
10.Home-Based Palliative Care - Elena Davis-Stenhouse, Kennan Moore, and Becky Niemeyer
11.Palliative Care in Long-Term Care Facilities - Mercedes Bern-Klug and Kelsey Simons
12.Palliative Care for Veterans - Louisa Daratsos
13.Special Considerations in Rural and Inner-City Areas - Richard B. Francoeur, Susan Murty, and
Bernice Sandowski
14.Clinical Trials and the Role of Social Work - Karlynn BrintzenhofeSzoc
15.Key Roles for Palliative Social Work in Correctional Settings - John F. Linder and Sheila R. Enders

Section 3
Social Work Practice: Screening, Assessment, and Intervention
16.Screening, Assessment and a Problem-Solving Intervention for Distress - James R. Zabora
17.Mental Health Risk in Palliative Care: The Social Work Role - Katherine Walsh and Susan Hedlund
18.Addressing Suffering in Palliative Care: Two Psychotherapeutic Models - Lissa Parsonnet and Carrie Lethborg
19.Spirituality and Social Work Practice in Palliative Care - Dona J. Reese
20.Discovering Strengths and Growth in Palliative Care - Susan Cadell, Sheryl Shermak, and Meaghen Johnston
21.Caregivers in Palliative Care: Roles and Responsibilities - Myra Glajchen
22.Families and Family Conferencing - Iris Cohen Fineberg and Amy Bauer
23.The Doctor within: Integrative Medicine, Social Work, and Palliative Care - Lucia McBee
24.Sexuality, Sensuality, and Intimacy in Palliative Care - Les Gallo-Silver
25.The Social Work Role in Pain and Symptom Management - John G. Cagle and Terry Altilio
26.The Whys and Wherefores of Support Groups: Helping People Cope - Nancy Sherman
27.Social Work and Technology: The Software and Hard Drive of Patient and Family Care - Katharine M. Campbell
28.Bereavement in the Beginning Phase of Life: Grief in Children and Their Families - Nancy F. Cincotta
29.Holding On and Letting Go: The Red Thread of Adult Bereavement - Susan Gerbino and Mary Raymer

Section 4
Population-Specific Practice
30.The Collaboration of Palliative Care and Oncology Social Work - A. Marlene Lockey, Diane Benefiel, and Margaret Meyer
31.Palliative Care in Chronic Kidney Disease - Teri Browne
32.Emerging Opportunities for Palliative Social Workers - Robin Rudy Lawson and Kelly M. McHenry
33.Social Work, HIV Disease, and Palliative Care - William Goeren
34.Palliative Care with Vulnerable Populations - Sarah Gehlert and Teresa Moro
35.Palliative Care with Lesbian, Gay, Bisexual and Transgender Persons - Kathryn M. Smolinski and Yvette Colón
36.Social Work in Pediatric Palliative Care - Barbara L. Jones, Stacy S. Remke, and Farya Phillips
37.Palliative Social Work with Older Adults and Their Families - Daniel S. Gardner

Section 5
Collaborations in Palliative Care
38.Teamwork in Palliative Care: An Integrative Approach - Doretta Stark
39.Social Work and Psychology - Becky A. Anderson, Louise E. Marasco, Julia Kasl-Godley, and Sheila G. Kennedy
40.Social Work, Fund-Raising, and Philanthropy: It's Not Just about Money - Laura Benson and Carolyn Messner
41.Social Work, Self-Advocates, and Users of Palliative Care - Peter Beresford and Suzy Croft
42.Social Work and Pharmacy - Maura Conry, Christopher M. Herndon, and Diane R. Jackson
43.Social Work and Child Life: A Family's Journey with Childhood Cancer - Ellen Goldring and Judith Solomon
44.Social Work and Psychiatry - Jimmie C. Holland and Anne Martin
45.Social Work and Creative Arts Therapy Services - John Mondanaro and Stacey Needleman
46.Social Work and Physician Collaboration in Palliative Care - J. J. Nadicksbernd, Kathryn Thornberry, and Charles F. von Gunten
47.Social Work and Nursing Collaboration in Palliative Care - Holly Nelson-Becker and Betty R. Ferrell
48.Social Work and Speech Pathology: Supporting Communication in Palliative Care - Robin Pollens and Marie C. Lynn
49.Social Work and Genetics - John M. Quillin, Jaclyn Miller, and Joann N. Bodurtha
50.Teamwork in Palliative Care: Social Work Role with Spiritual Care Professionals - Donna L. Soltura and Linda F. Piotrowski
51.Social Work and Bioethics: Enhanced Resolution of Ethical Dilemmas and the Challenges along the Way - Gary L. Stein and Jeanne Kerwin
52.Social Work and Volunteers - Wendy Walters and Dennis E. Watts

Section 6
Palliative Social Work: Regional Voices from a Global Perspective
53.The Need for Global Capacity Building for Palliative Social Work - Rebecca Myers and Elizabeth J. Clark
54.Palliative Care, Culture, and the Pacific Basin - Linda Anngela-Cole, Lana Sue Ka'opua, and Yvonne Yim
55.Palliative Social Work in Canada - Susan Cadell and Harvey Bosma
56.Palliative Social Work in Central-Eastern Europe: The Emerging Experience of Romania - Csaba L. Degi
57.Palliative Social Work in Buenos Aires, Argentina - Elena D'Urbano
58.Australian Palliative Social Work - Julie Garrard, Julie Greathouse, Sue Hearn, and Patricia McKinnon
59.Palliative Social Work: An African Perspective - Jennifer Jane Hunt and Valerie Maasdorp
60.Palliative Social Work: An Indian Perspective - Aarti Jagannathan and Srilatha Juvva
61.Palliative Social Work in Japan - Yukie Kurihara
62.Palliative Care in the Chinese Context: An Integrated Framework for Culturally Respectful Practice - Pamela Pui Yu Leung and Cecilia Lai Wan Chan
63.Palliative Social Work in Singapore - Tzer Wee Ng and Cheng Wan Peh
64.Palliative Social Work in the United Kingdom - Malcolm Payne and Margaret Reith
65.Palliative Social Work in Israel - Shlomit Perry
66.Selected Issues in Palliative Care among East JerusalemA rab Residents - Hanan Qasim

Section 7
Ethics
67.Ethical Considerations in Palliative Care: An Overview - Patricia O'Donnell
68.The Social Work Role in Decision Making: Ethical, Psychosocial, and Cultural Perspectives - Tracy Borgmeyer
69.Advance Directives from a Social Work Perspective: Influence of Culture and Family Dynamics - Karen Bullock
70.Pediatric Palliative Care Ethics and Decision Making - Hollye Harrington Jacobs
71.Social Work's Ethical Challenge: Supporting the Terminally Ill Who Consider a Hastened Death - Tracy A. Schroepfer, John F. Linder, and Pamela J. Miller
72.Palliative Sedation: A View through the Kaleidoscope - Terry Altilio

Section 8
Professional Issues
73.Navigating in Swampy Lowlands: A Relational Approach to Practice-Based Learning in Palliative Care - David M. Browning and Susan Gerbino
74.Enhancing Professionalism, Leadership, and Advocacy: A Call to Arms - Mary Raymer and Gary Gardia
75.The Power and Potential of Language - Terry Altilio
76.Professional Development: Educational Opportunities and Resources - Ellen L. Csikai and Barbara L. Jones
77.Professional Connections for Palliative Social Workers - Ellen L. Csikai
78.Financial Considerations for the Palliative Social Worker - Jaime Goldberg and Michal Scharlin
79.Social Work Research Agenda in Palliative and End-of-Life Care - Guadalupe R. Palos
80.Merging Research and Clinical Practice - Debra Parker Oliver and Karla T. Washington
81.Quality Improvement and Organizational Change - Barbara Ivanko
82.Public Policy in Palliative and End-of-Life Care - Judith R. Peres
83.Self-Care as Best Practice in Palliative Care - Elizabeth J. Clark
84.Legacy Building: Implications for Reflective Practice - Shirley Otis-Green

Epilogue: Lessons Learned along the Yellow Brick Road
Appendix
Index