Oxford Textbook of Shared Decision Making in Healthcare

Healthcare systems around the world are placing increasing importance on the relationship between patient choice and clinical decision-making, with many countries having shared decision making as a central theme in their healthcare policy developments. The concept of shared decision making (SDM) in healthcare is simple: clinicians and patients work together when solving problems and making decisions. However, the context and implementation are more challenging.

Written by a global team of experts, the Oxford Textbook of Shared Decision Making, fourth edition, examines from both theoretical and practical perspectives, what comprises an effective decision making process, looking at the benefits and potential difficulties that arise when patients and clinicians share healthcare decisions. The first sections cover the theory, methods, and implementation of SDM. Later sections examine SDM from the viewpoints of different clinical and surgical specialities, and allied disciplines such as nursing, pharmacy, and midwifery. Each chapter contains reflections from a patient partner with lived experience of SDM, giving a truly diverse and collaborative account of how SDM can work between patients, families, carers, and healthcare professionals.

Authoritative, evidence based, and grounded in clinical practice, the Oxford Textbook of Shared Decision Making explores a very important paradigm shift in the delivery of healthcare, providing thoughtful consideration and key strategies for its successful implementation.

Glyn Elwyn, Professor and Physician Researcher, The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, Hanover, New Hampshire, USA,Natalie Joseph-Williams, Reader in Improving Patient Care and Associate Director for the Health and Care Research, Wales Evidence Centre, School of Medicine, Cardiff University, Cardiff, UK,Adrian Edwards, Professor of General Practice, Director of PRIME Centre Wales and Health & Care Research Wales Evidence Centre, Division of Population Medicine, Cardiff University, Cardiff, UK

Glyn Elwyn is a clinician and researcher. He is a tenured professor at The Dartmouth Institute for Health Policy and Clinical Practice in the USA, and has visiting chairs at Radboud University Nijmegen, University College London, UK, and the University of Lausanne in Switzerland. He studies coproduction and shared decision making in the context of learning health care systems, and the application of machine learning to digital recordings of clinical encounters. His website can be found at: www.glynelwyn.com http://www.glynelwyn.com.

Natalie Joseph-Williams is a Reader in Improving Patient Care at Cardiff University, UK. She is also a Board member and Scientific Lead for the International Shared Decision Making Society. Her specific research interests include implementation of person centred approaches in routine healthcare systems, patient and public involvement and engagement in health research, and shared decision making training for health and care professionals.

Adrian Edwards is Professor of General Practice at Cardiff University, UK. He is also a part-time general practitioner in Cwmbran, Gwent, South Wales, and has a visiting professorship at Aarhus University, Denmark. His research interests have been in shared decision making and the development of decision aids, health literacy and self-management support.

Part 1: Introduction1. Enabling shared decision making in practice, Glyn Elwyn, Natalie Joseph-Williams, Karina Prévost, Adrian Edwards, and Christopher R. JacobsPart 2: The theory of shared decision making2. The limits of shared decision making, Glyn Elwyn, Amy Price, Juan V.A. Franco, and Pål Gulbrandsen3. Coproduction and learning health systems, Paul B. Batalden, E. Chandlee Bryan, Anna Edwards, and Eugene C. Nelson4. Value-based health care and shared decision making, Anne M. Stiggelbout, Willem-Jan Bos, Lowri Smith, and Sally Lewis5. Patient capacity and shared decision making, Tim Lahey, Angie Burke, and Glyn Elwyn6. Cultural adaptation of shared decision making and patient-centred care models, Paulina Bravo, Eman Abukmail, Yuko Goto, Irma Vargas, Lyndal Trevena, and Martin Härter7. Is shared decision making appropriate for diagnostic decisions?, Paul K.J. Han, Laura Zwaan, Déserée Hairwassers, and Glyn Elwyn8. The individual and social ethics of shared decision making: Critiques and responses, Zackary Berger and Angela WilliamsPart 3: Methods in SDM research9. Measurement of shared decision making, Isabelle Scholl, Denitza Williams, Otmar Kodalle, and Marleen Kunneman10. Patient-reported measurement in shared decision making, K.D. Valentine, Rachel C. Forcino, E. Chandlee Bryan, and Karen Sepucha11. Observational measurement of shared decision making, Anik Giguere, Marleen Kunneman, and Karina Prévost12. Innovation in shared decision making assessment, Marleen Kunneman, Matthijs Graner, and Isabelle SchollPart 4: Approaches to teaching and training13. Shared decision making teaching frameworks, Tammy C. Hoffmann, Mina Bakhit, and Anna Waters14. Best case/worst case: A framework to improve medical communication and decision making in high risk and uncertainty situations, Melanie Fritz, Amy Zelenski, Margaret Schwarze, and Kathy Kastner15. Innovations in shared decision making teaching, Pål Gulbrandsen, Arwen H. Pieterse, and Arne LeinPart 5: Implementation16. Where are we now? An overview of international progress in shared decision making implementation, Natalie Joseph-Williams, Adrian Edwards, Julie Kenealy, and Glyn Elwyn17. Overview of shared decision making implementation, Rachel C. Forcino, Danielle Schubbe, and Myrtle Mitchell18. The International Patient Decision Aid Standards (IPDAS) collaboration: Evolution and current status, Robert J. Volk, Krystina B. Lewis, Maureen Smith, and Dawn Stacey19. Patient decision aids: Characteristics and evidence of effectiveness, Dawn Stacey, Krystina B. Lewis, Maureen Smith, and Robert J. Volk20. Patient decision aids: Access and sustainability of up-to-date tools, Anja Fog Heen, Roger Bertozzi, and Thomas Agoritsas21. Large-scale implementation of shared decision making in Germany: Three case studies, Pola Hahlweg, Anja Lindig, Cordula Mühr, Kai-Uwe Parsons-Galka, Fülöp Scheibler22. Implementation of shared decision making in the USA: Case studies, Dan D. Matlock, Chris Knoepke, Mayuko Ito Fukunaga, and Susan Strong23. Implementation of shared decision making in Denmark: A case study, Karina Olling, Marlene Würgler, Karina Dahl Steffensen, and Jan Faldt Bentsen24. Implementation of shared decision making in the Netherlands: A case study, Arwen H. Pieterse, Haske van Veenendaal, Dominique Sprengers, and Trudy van der Weijden25. How to improve shared decision making in your practice: Using improvement methods to drive change, Alf Collins, Helen Bulbeck, and Paul GrundyPart 6: The view from the clinical specialities26. Shared decision making from the perspective of primary care, Leigh Sanyaolu, France Legare, Adrian Edwards, and Susannah Fraser27. Shared decision making in mental health care, Yumi Aoki, Lilisbeth Perestelo Pérez, Yaara Zisman-Ilani, and Hidetoshi Matsuura28. Shared decision making in paediatrics and child health care, Douglas J. Opel, Naomi Laventhal, Nancy Kuemin, and Seema Shah29. Shared decision making in obstetrics and gynaecology, Johanna (Annemijn) W.M. Aarts, Laura Spinnewijn, Tina C. Foster, and Jolanda Wellen30. Shared decision making in cancer care, Karina Dahl Steffensen, Dawn Stacey, Liesbeth Boersma, and Mona Muusmann Petersen31. Shared decision making in endocrinology, Naykky Singh Ospina, Victor M. Montori, Rene Rodriguez-Gutierrez, and Ruth McCullars32. Shared decision making in thoracic surgery, Alessandro Brunelli and Janette Rawlinson33. Shared decision making in colon and rectal surgery, Srinivas Joga Ivatury, Helene Juul Würtz, Alexander T. Hawkins, and Craig Creelman34. Shared decision making in care for older adults with multiple chronic conditions, Bianca Buurman, Ruth Pel, Gérard Hendriks, and Wim Roelofs35. Shared decision making in cardiovascular care, Joshua B. Rager, Tod Papageorge, and Erica S. Spatz36. Shared decision making in dermatology, Tessalyn Morrison, Erin Foster, and Rita Pipes37. Shared decision making in vascular surgery, Elisabeth Smith, Daniel C. Norvell, Dirk T. Ubbink, Michael Mcloughlin, and David C. Bosanquet38. Shared decision making in breast cancer surgery, Adele Ketley, Sam Brunsden, Lynda Wyld, and Jenna Morgan39. Shared decision making in urology, Giulia M. Ippolito, Roshan Paudel, Marty Chakoian, Jerry Thomas, and Danil V. Makarov40. Shared decision making in orthopaedic surgery, Elizabeth A. Kroll, Adina Harri, Robert Schlegel, and Vincent D. Pellegrini41. Shared decision making in public health: Balancing individual choice with the common good, Rachel C. Forcino, Robert M. Kaplan, Helen Leonard, and Christian von Plessen42. Shared decision making for screening, Jolyn Hersch, Rikke Nicoline Stokholm, Janice Tufte, and Carissa Bonner43. Shared decision making in ophthalmology, Rashmi G. Mathew, Hannah M. Timlin, Olawale A. Akinrogunde, and Carrie J. MacEwen44. Shared decision making in otolaryngology, Elaine C. Thompson, Hannah Leavitt, Paul Hong, and Emily F. Boss45. Shared decision making in gastroenterology and hepatology, Saam Dilmaghani, Johannah Ruddy, Ian Hargraves, and Jean Fox46. Shared decision making in neurology, Constanze Stolz-Klingenberg, Michaela Prigge, Walter Maetzler, and Christoph Heesen47. Shared decision making in emergency medicine, Fernanda Bellolio, Kasey Boehmer, and Erik Hess48. Shared decision making interventions for kidney failure treatment and management, Hilary L. Bekker, Jeanette Finderup, Andrew Mooney, Henning Søndergaard, and Anna E. Winterbottom49. Shared decision making in haematology, Paulus A.F. Geerts, Thomas W. LeBlanc, and Wiebe Cnossen50. Shared decision making in plastic surgery, Rakhshan Kamran, Kenny Ardouin, Liam J. Peck, and Jeremy N. Rodrigues51. Shared decision making in palliative and supportive care, Meredith MacMartin, Pola Hahlweg, Joan Collison, and Simon Noble52. Shared decision making in intensive care and anaesthetics, Mark D. Neuman, Mary C. Politi, May Hua, and Hugo Campos53. Shared decision making in psychosomatic conditions, Yaara Zisman-Ilani, Wiebke Frerichs, Scout Silverstein, and Martin Härter54. Shared decision making in rheumatology, Namrata Singh, Eileen Davidson, Cheryl Crow, and Jennifer L. BartonPart 7: The view from allied disciplines55. Shared decision making in midwifery, Deirdre Daly, Valerie Smith, Marianne Nieuwenhuijze, and Ellen McEvoy56. Shared decision making in physiotherapy, Rob Letchford, Elaine Taylor, Martin Dando, and Zoe Silsbury57. Shared decision making in nursing and advanced practice nursing, Kirsten Lomborg, Jeanette Finderup, Sally Thorne, and Henning Søndergaard58. Shared decision making in pharmacy, Jonathan Underhill, Steven D. Williams, Carole Pitkeathley, and Neal Maskrey59. Shared decision making in dentistry, Anwen Cope, Ivor G. Chestnutt, and Jennifer Wilson60. Shared decision making for people living with multimorbidity: Perspectives from psychology, physiotherapy, occupational therapy and lived experience, Darren Flynn, Katherine Baker, Gemma Bradley, Craig Craggs and Jason ScottPart 8: The way forward61. Technological innovations: Use of artificial intelligence in shared decision making, Samira Abbasgholizadeh Rahimi, Dan Poenaru, Glyn Elwyn, and Karina Prevost62. Shared decision making: A patient perspective, Sara Riggare, Amy Price, Dawn P. Richards, Valerie C. Cates, and Glen Hazlewood63. The importance of cost conversations as part of shared decision making, Mary C. Politi, Carrie C. Coughlin, Lindsay Kuroki, and Jessica Miller64. Increasing equity in shared decision making, Marie-Anne Durand, Julie Ayre, Catherine H. Saunders, Christine M. Marx, and Kirsten McCaffery65. The law and shared decision making: Recent developments, Thaddeus Mason Pope, Valerie Gutmann Koch, and Nadine Montgomery Allam66. Where do we go from here? International priorities for shared decision making practice and research, Natalie Joseph-Williams, Glyn Elwyn, Libby Humphris, and Adrian Edwards