Quality of Life from Nursing and Patient

Bridges the gap between research and practice in light of the move toward incorporating quality of life measures in practice. Text represents an effort to communicate a review of the factors related to the conceptualization, measurement, and applica- tion of quality of life research and its relevance for nurses. DNLM: Neoplasms--nursing.

Foreword

xi

(4)

Preface

xv

(2)

Acknowledgments

xvii

(2)

Contributors

xix

SECTION 1 OVERVIEW

1

(34)

Chapter 1 Evolution of Quality of Life in Oncology and Oncology Nursing

3

(20)

Marcia M. Grant

Lynne M. Rivera

Chapter 2 Overview of Quality of Life and Controversial Issues

23

(12)

Cynthia R. King

SECTION 2 THEORY

35

(80)

Chapter 3 Theories and Conceptual Models to Guide Quality of Life Related Research

37

(17)

April Hazard Vallerand

Diane M. Breckenridge

Nancy A. Hodgson

Chapter 4 Guidelines for Achieving Clarity of Concepts Related to Quality of Life

54

(20)

Joan E. Haase

Carrie Jo Braden

Chapter 5 Quality of Life and Culture

74

(19)

Geraldine V. Padilla

Marjorie Kagawa-Singer

Chapter 6 Quality of Life in Children and Adolescents with Cancer

93

(22)

Pamela S. Hinds

Joan E. Haase

SECTION 3 RESEARCH

115

(80)

Chapter 7 Quality of Life Methodological and Measurement Issues

117

(23)

Mel R. Haberman

Nigel Bush

Chapter 8 Quality of Life and Symptoms

140

(17)

Betty R. Ferrell

Marcia M. Grant

Chapter 9 Quality of Life in Families Experiencing Cancer

157

(19)

Kathleen M. Stetz

Chapter 10 Quality of Life Issues in Breast Cancer: Concerns, Challenges, and Opportunities

176

(19)

Karen Hassey Dow

SECTION 4 PRACTICE

195

(90)

Chapter 11 Clinical Implications of Quality of Life

197

(7)

Cynthia R. King

Chapter 12 Quality of Life Issues Related to Marrow Transplantation

204

(27)

June G. Eilers

Cynthia R. King

Chapter 13 A European Perspective on Quality of Life of Marrow Transplantation Patients

231

(24)

Monica C. Fliedner

Chapter 14 Fatigue and Quality of Life: A Question of Balance

255

(30)

Margaret Barton Burke

SECTION 5 PATIENT PERSPECTIVES

285

(26)

Chapter 15 Cancer Survivorship: Quality for Life

287

(14)

Susan A. Leigh

Ellen L. Stovall

Chapter 16 Quality of Life Stories by Patients and Families

301

(10)

A Journey through Cancer

301

(5)

Michael C. Sullivan

Life's Presents

306

(1)

Lynne M. Rivera

A Personal Perspective of Quality of Life

306

(2)

Anonymous Patient

Oncology and Spirituality: A Spouse's Story

308

(3)

Anonymous Spouse

SECTION 6 CONCLUSION

311

(8)

Chapter 17 Nursing and Patient Perspectives on Quality of Life

313

(6)

Pamela S. Hinds

Cynthia R. King

Appendix 1 Definitions of Quality of Life

319

(8)

Appendix 2 Quality of Life Measurements

327

(54)

I. Example of the Global Single Item Approach to Measuring Quality of Life

329

(2)

Quality of Life Visual Life Analogue Scale (VAS)

329

(2)

Kate Lorig

II. Examples of Generic Measures of Quality of Life

331

(20)

The McCorkle and Young Symptom Distress Scale

331

(4)

Ruth McCorkle

Kathy Young Graham

Demands of Illness Inventory

335

(12)

Mel R. Haberman

Quality of Life Index

347

(4)

Geraldine V. Padilla

Marcia M. Grant

III. Examples of Cancer-Specific Measures of Quality of Life (Single Measure Approach)

351

(14)

Quality of Life Index: Cancer Version

351

(4)

Carol Ferrans

Quality of Life Scale: Bone Marrow Transplant

355

(10)

Betty R. Ferrell

Marcia M. Grant

IV. Example of Cancer-Specific Measure of Quality of Life (Battery Approach)

365

(8)

Quality of Life Components for Pediatric Oncology Group (POG) Protocols

365

(8)

Andrew Bradlyn

V. Example of Cancer-Specific Measure of Quality of Life (Modular Approach)

373

(8)

The Bush Bone Marrow Transplant Symptom Inventory

373

(8)

Nigel Bush

Index

381

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Quality of Life from Nursing and Patient Perspectives

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Table of Contents

Supplemental Materials