Society and Genetic Information : Codes and Laws in the Genetic Era

, by Sandor, Judit

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ISBN: 9789639241756 | 963924175X
Cover: Paperback
Copyright: 4/1/2004

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Supplemental Materials

ABOUT THE AUTHORS

(4)

LIST OF TABLES AND FIGURES

(1)

LIST OF ABBREVIATIONS

(3)

PREFACE by Octavi Quintana-Trias

(4)

INTRODUCTION

Judit Sándor: Genetic Information: Science, Society, and Legal Norms

(36)

I. GENETIC INFORMATION AND BIOMEDICAL SCIENCE

Pál Venetianer: Genetic Revolution?

Consequences for Science and Society

(10)

István Rasko: What Can We Do with Our Genetic Knowledge?

(14)

II. GENETIC INFORMATION: ETHICAL AND CULTURAL ASPECTS

Béla Somfai: Religious Traditions and Stem Cell Research

(14)

Imre Szebik: Moral Dilemmas of Gene Transfer Techniques

(10)

III. LAW IN THE GENETIC ERA

Roberto Andorno: Seeking Common Grounds on Genetic Issues: The UNESCO Declaration on the Human Genome

105

(20)

David Townend: Who Owns Genetic Information?

125

(20)

Sheila McLean: The Genetic Testing of Children

145

(16)

Gregor Wolbring: A Disability Rights Approach to Genetic Discrimination

161

(26)

Jürgen Simon: Insurance and Genetic Testing in Germany and the International Context

187

(16)

IV. GENETIC DATABANKS

Ragnar Aoalsteinsson: The Constitutionality of the Icelandic Act on a Health Sector Database

203

(10)

Krista Kruuv and Ants Nomper: The Estonian Genome Project

213

(12)

Valdis Pirags and Elmdrs Grens: The Latvian Genome Project

225

(8)

Aivita Putnina: Population Genome Project in Latvia: Exploring the Articulation of Agency

233

(14)

Alan Doyle, Frances Rawle, and Peter Greenaway: The UK Biobank

247

(20)

APPENDIX

267

(122)

Legal and Ethical Norms in the Field of Genetics. A Selection of International and National Legal Documents, Reports, and Policy Recommendations

267

(16)

Universal Declaration on the Human Genome and Human Rights (UNESCO, 1997)

283

(8)

International Declaration on Human Genetic Data (UNESCO, 2003)

291

(14)

Convention on Human Rights and Biomedicine (Council of Europe, 1997)

305

(14)

Additional Protocol on the Prohibition of Cloning Human Beings (Council of Europe, 1998)

319

(4)

European Biotechnological Directive (European Parliament and the Council of Europe, 1998)

323

(16)

Health Sector Database Act (Iceland, 1998)

339

(10)

Biobanks Act (Iceland, 2000)

349

(8)

Human Genes Research Act (Estonia, 2001)

357

(18)

Human Genome Research Act (Latvia, 2003)

375

(14)

BIBLIOGRAPHY

389

(18)

INDEX

407

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Society and Genetic Information : Codes and Laws in the Genetic Era

Table of Contents

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