Constructive Campaigning for Autism Services

Constructive Campaigning for Autism Services is a practical guide for parent campaigners who want to play a part in building better autism services.

Acknowledgements

9

(2)

Foreword

11

(2)

Introduction

13

(8)

What is the Parents' Handbook?

13

(1)

What is PACE?

14

(1)

Working for all children with autism

14

(1)

Why get involved?

14

(3)

Why get involved now?

17

(1)

Differences between LEAs: 'customised campaigning'

18

(3)

Before you begin. . .

21

(13)

Separating two objectives: improving services for all children with autism and seeking to meet your own child's needs

21

(2)

Working out what you want to achieve

23

(1)

Working with other parents

24

(6)

What are public authorities and services like in your area?

30

(4)

Initial steps in approaching public authorities

34

(9)

Thinking around the problems

34

(1)

Winning people over

35

(1)

Whom to approach and when

36

(6)

Getting officers to engage with you

42

(1)

When the local authority approaches you

43

(6)

Responding to public authority consultations

43

(4)

Invitations to user groups and forums

47

(2)

Building relationships and influence

49

(13)

Building mutual respect

49

(1)

Making meetings work

50

(2)

Identifying and developing common ground

52

(2)

Putting across your perspective

54

(4)

Assessing progress -- and what to do if things don't seem to be moving forward

58

(1)

Making use of political processes in local authorities

59

(3)

Using external levers of influence: MPs, the media and the law

62

(12)

Contacting your MP

62

(3)

Using the media

65

(4)

Using the law

69

(1)

Local authority complaints procedures

70

(1)

Using administrative procedures to hold authorities to account

71

(3)

Common dilemmas faced by parent campaigners

74

(6)

Do we go for short-term warfare or long-term diplomacy?

74

(3)

Is there a danger that different parent approaches will undermine each other?

77

(3)

Local government -- structures, people and processes

80

(8)

Funding

80

(1)

Local government structure

81

(1)

Who's who in local government?

82

(2)

Using local authority structures

84

(1)

Local government mechanisms that parents can use

85

(3)

Changes to children's services: policy and structures

88

(11)

How education, social services and health fit together

88

(5)

Bringing the services together: recent government policy

93

(2)

Four common misinterpretations of government policy

95

(4)

The current state of autism services

99

(5)

The shortfall in skills and specialist provision

100

(1)

Pressure on parents and families

101

(1)

Conflict between parents and local public agencies

101

(3)

Resources

104

(6)

References and key documents

104

(1)

Legislation

105

(1)

Political resources

106

(1)

Advisory organisations and contact details

106

(1)

Other resources

107

(2)

Contact PACE

109

(1)

List of abbreviations

110

(1)

Index

111

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Constructive Campaigning for Autism Services

Summary

Table of Contents

Supplemental Materials

FREE SHIPPING

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Constructive Campaigning for Autism Services

Summary

Table of Contents

Supplemental Materials

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